Most days I’m okay, just glad to be still alive. I’m still working full-time and can drive and get around. It’s just a huge inconvenience.
Other days however, the despair is so heavy that it feels like a weight on my chest. It’s a cliche that all this feels like a dream and I just need to wake up but I can’t. With such a long waiting list for a transplant, it may as well be forever.
Life with chronic diseases 