Good news first. The meeting at UCLA went well. We met with four people: nephrologist, social worker, transplant nutritionist, and my case coordinator. The most important was the meeting with the doctor since he/she determines whether I am still healthy enough for a transplant. I think that went well; I need to get a heart stress test and possibly change one of my medications. The other meetings were more informational and for them to update their records. Now it’s up to my friend/donor to see if he passes the medical tests in a few days.
The bad news. I also had a regular appointment with my nephrologist. For the past few blood tests, my phosphorus and creatinine levels have been super high. This points to me not getting enough cleaning with peritoneal dialysis since those numbers were in check while on hemodialysis. The numbers are so high that my nephrologist thinks that PD may not work for me and I will have to go back to hemodialysis. We are going to add another hour(!) to my nightly cycle and run 24 hour manual exchanges on weekends for a few months to see if this latest live donor attempt works out. If not, then possible another surgery and back to dialysis clinics.
Just when you think things cannot get worse, life surprises you.
Life with chronic diseases 