Sigh… each weekend seems to be worse than the previous. Since adding the extra hour at night and an extra manual fill during the day, I’ve been feeling less tired. Add a small cup of coffee in the afternoon, I have not been falling asleep on the drive home from work. I also attended a potluck with my church cell group and was telling everyone that I felt better.
So on Saturday night, I started connecting the cycler as usual. However, after priming, I noticed that the patient line was still full of air. I re-primed the cycler and the same thing happened. Finally, after putting the tubing on the floor for a gravity assist, the air was purged from the line. That should have been a red flag but I didn’t want to throw out 15 liters of new solution and start over.
As expected, all the drains/fills took forever with slow flow warning alarms going off ever few minutes. I think I started a bit late but was still on first drain after three hours. Finally, after the second drain, I let the cycler do a half fill then turned it off. I carried that partial fill until about 10am, drained it and did another manual fill of about 1800 mL, then drained that at 4pm this afternoon. I was hoping this was enough to compensate for the incomplete overnight cycles.
Having not eaten anything all day, I tried taking a bowl of chicken noodle soup. I was about 90% done when everything came back up. Luckily I made it to a toilet in time since more fluid came out than the soup. It felt alike all the water I drank today came up as well. Ugh.
Now it’s about 7pm and I need to start connecting again. I’m hoping I can try some more soup after connecting. Despite what I posted earlier, this is no way to live. I’m worried about going to work if I’m going to vomit up 12 hours of food/drink randomly. Here’s hoping the cycler works tonight since I don’t want to go through today’s fun again.
Life with chronic diseases 