Wait List and Transplant Statistics

Found another website with lots of data: SRTR (Scientific Registry of Transplant Recipients). Here is the webpage for a summary of kidney transplants at UCLA Medical Center and a 63 page detailed report.

Here’s what I got out of the reports:

• Total people on wait list at UCLA = 2,146 (at end of June 2019)
• Type B = 15.5% or ~333 people
• Asian = 19.7% or ~428 people
• For the 1,488 people listed from 7/1/2013 to 6/30/2016, only 20.2% received a deceased donor transplant after three years compared to 25.4% nationwide
• For Asians, there were 266 people listed and only 13.5% received a deceased donor transplant after three years compared to 21.9% nationwide
• For blood type B, there were 233 people listed and only 20.2% received a deceased donor transplant after three years compared to 21.0% nationwide
• The wait list appears to be longer at UCLA than the national average but for blood type B, the difference appears to be very small

Since they kept talking about the Mayo Clinic in Arizona at the support group I attend this past weekend, I looked up some of the same information. I think the most important number is the three year transplant rate for blood type B. The number is 51.9% for Mayo Clinic compared to 20.2% at UCLA. Since I have ~3.4 years accrued on the UNOS wait list, there’s a 50/50 chance that I would have had a deceased donor transplant already if I listed at Mayo Clinic.

I’m still counting on one of my two potential donor transplant candidates. The drug requirements and mortality outcomes are much better but if both don’t work out, then transferring to Mayo Clinic seems like a real option.