Peripheral Neuropathy 3/10/2020 (updated)

Wow, the numbness and tingling in my feet is driving me crazy today. It felt really intense this morning while I was trying to sleep. The combination with my chest pains kept me from falling asleep all night/morning. Now during dialysis, it feels even worse and I’m not sure why. My weight and fluids are not that high compared to last session.

I don’t know what to do. There’s still 2.5 hours left and I’m starting to feel like I did that time in December when I had to go to the ER. I don’t want that again.

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I asked the technician if I can stand up and stretch my legs and he said no. I think they’re really worried about low blood pressure and me fainting if I stand up. My sitting blood pressure is at 152/85 so I think it’s ok to stand. Anyway, he gave me a paper towel soaked in ice water to put on my head and neck. That helped to cool me down a bit but doesn’t do anything about my neuropathy. I feel a bit better and sitting up as much as possible to stretch my left leg but it still sucks. 2:04 left on the dialysis timer…

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There’s an old Hispanic guy in the chair in front of me. He’s confined to a wheelchair and I’ve never heard him speak English. He alternates between sleeping and looking over at me. I’m not sure what he wants.

Go back to sleep!

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19 minutes left. I’m not sure how I lasted this long. My nephrologist came by on her rounds so that distracted me for 15 minutes. The problem is they lowered my dry weight some more to 90 kg.

16 minutes left. I was going to ask them to let me off a few minutes early since my session will end right at 1:00 pm and I have another appointment at 1:15 pm right across the street. It’s really busy in here though. I’ll try to put on the manual tie-on mask now to save time.

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It’s now 6:20 pm and at home. I had an appointment to see the vascular surgeon after dialysis. The plan was to go to cardiac rehab after that but I was so tired that I just came home around 2:00 pm. I then took a long nap since I did’t sleep this morning but when I woke up, the numbness and tingling in my feet was even worse, if that’s possible. I had to walk around the upstairs hallway in my house to try and get the feeling to subside.

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