Neuropathy Pain During Dialysis (updated)

Crap! The outside of my right foot just started hurting and it’s pretty intense. I don’t think I’ve ever had the nerve pain start up during dialysis. Right now it’s occuring about a minute apart and probably will start increasing in frequency and intensity soon. I hate it when it happens during dialysis since I can’t get up and walk around. Also I don’t have my Codeine pills here, only regular Tylenol so I took two pills. It probably won’t help and there is still 2:09 left on the machine.

I can’t believe it’s happening again so soon after the last occurance. It used to be about a month between attacks. If this is going to happen every few days, then I’m dead. I probably won’t have any choice but to get more medications for nerve pain.

Damnit, I hate this. The nerve pain and numbness won’t go away after transplant so there is really no hope for relief.

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It’s about 12:45 pm and there is 16 minutes left on the dialysis machine. The pain has mostly subsided for about 45 minutes, with very occasional attacks. I don’t know if it’s the Tylenol or if this is a new pattern: shorter duration bit more often episodes. My foot is still twitching so it’s not over yet.

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Nope. Wishful thinking. I just got home and the same spot is hurting again like the lull never happened.

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The pain is a lot worse than I remember pre-surgery. I guess I’m paying for the three month’s of peace I had. I’m not sure I can function if the pain comes back every few days. There is no way I can concentrate enough to work and definitely no way I can sleep.

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It’s almost midnight now. My foot was hurting all day until I managed to nap a few hours. However, as soon as I woke up, the pain returned. This is also kinda new. Previously, I would never be able to sleep while the pain attacks were happening. Once I did fall asleep, typically the pain would stop when I woke up. I took two Codeine pills in the afternoon and two regular Tylenol pills after dinner so I’m maxed out on acetaminophen for today. Fortunately, the pain intensity seems to be slightly less so many this episode is winding down.

If felt weird walking around the upstairs hallway at home. I was so tired from the lack of sleep so I felt like I was going to fall asleep while walking the 20 feet over and over again. As soon as I get in bed, the pain would keep me awake. I think taking two Codeine pills finally knocked me out but the drug effects wore off too soon.