Ugh, I’m tired of writing about this but the attacks are coming in almost daily. I was at my limit when the pain episodes were occurring once a month, but now it’s almost non-stop. The pain from 7/26 subsided this morning but it was enough to prevent me from sleeping that much. As a result, I was super tired during dialysis. I think I fell asleep at 6:00 am and didn’t get up until 8:30 am. That session felt like the fastest ever since I slept through most of it.
Since my feet felt better, I took a short nap at around 1:00 pm and didn’t get up until almost 6:00 pm. But as soon as I got up, another pain site popped up on my left foot, a bit higher up on the insole than the case on 7/23. I said before that I didn’t want more medication since I’m on so many of them now but I’m beginning to change my mind. I can’t stand this anymore. Worse, this probably won’t improve with a kidney transplant since it’s the result of prior uncontrolled diabetes. Even though I have my blood sugar well controlled now, it won’t matter.
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Double ugh. Many websites say to keep well hydrated to avoid or reduce neuropathy. Well, that sucks for dialysis patients, especially when my nephrologist keeps reducing my dry weight. It was reduced to 87.5 kg last Tuesday, and today, it was reduced further to 87.0 kg. I have been leaving the dialysis center at ~87.5 kg lately, the lowest weight for me in recent memory. Is this just coincidence or am I drying out, causing more instances of neuropathic pain?
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This is killing me. The pain switched from the left foot to the toes of the right foot suddenly. The left foot pain was more prolonged but not very painful. The right foot pain now is super painful and spread across the bottom of three toes. Ugh, I can’t stand this anymore.
Life with chronic diseases 