UCLA Video Call

We had our call with UCLA transplant center‘s medical director this morning. They wanted me to log on 30 minutes before the meeting so I was at my sister’s house at 7:00 am this morning. The call used some meeting function in myChart from Epic, which is a large provider of online health data according to my sister. The issue is only I had an account at UCLA Health and they wanted both of us on the call.

A coordinator came on 20 minutes before the meeting and got my medication list updated, then we spoke to the doctor for about 20 minutes. He didn’t really discuss the kidney cancer/tumor issue at all but more of a update on my status meeting. At the end, he said he will recommend to the teams to move forwared with the transplant. My sister will have to repeat some tests that are over a year old, and I’ll need to do a heart stress test and get a colonoscopy. Crap!

After speaking to the medical director, my transplant coordinator came one the line. I don’t think I’ve talked to her before. She said the previous coordinator I spoke was mainly for people on hold. Since I’m active now, whe will be my coordinator. I feel a lot better that they’re not rejecting or delaying my sister as a donor. As long as we pass the medical tests, I think the transplant will come fairly soon.

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My coordinator just called me again asking if the doctor specifically mentioned the cancer risk if I accept my sister’s kidney. He did not go over that part even though it was the original purpose of the call. Sigh… he may have to call me back again. The neverending story…