On the video call last Friday, my new transplant coordinator said that she would put documents on the myChart portal for me. Unlike the St. Joseph Hospital portal, I don’t think I got an email notification. I just check now and there are several documents and a list of things for me to do.
- Nuclear medicine stress test (Lexixcan)
- Transition off my current blood thinner medication
- Check with primary physician if I need a colonoscopy
Unfortunately, I already had a referral for a colonoscopy from my primary care doctor. Before I was able to follow-up, the heart surgery hit and then COVID-19 and here we are. I’ve already scheduled my CT scan for the thoracic surgeon for next week. Coincidentally, the cardiology department at St. Joseph called me today to schedule the Lexiscan. The person on the phone said my cardiologist ordered it for my transplant. UCLA must have called her office since I didn’t update any of my doctors on the transplant progress yet. I hope the two tests are not related, i.e., the stress test will show my heart is okay (should be post-surgery) even though something in the chest cavity causing pressure in my chest.
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Also, my transplant coordinator called me Monday to tell me that the medical director we spoke to last Friday may call me to talk to me again, since we didn’t discuss the minimal cancer risk. I told her I was available in the afternoon, and he hasn’t called yet. He did call my sister however, to let her know that they are progressing with the transplant. Weird.
Life with chronic diseases 