😰… I’ve been a bit slack in controlling my fluid intake this week. My “dry” weight is currently 78.2 kg, but I ended Sunday’ session at 80.x kg (I can’t remember the exact number). I don’t think I went overboard with food and drink. In fact, it’s about 2:00 am right now (can’t sleep again) and I am starving. The scale at home is not calibrated with the scale at the clinic but I am 82.6 kg this morning without shoes. I typically weight myself at the clinic with shoes on, and then subtracting 0.5 kg to get to a consistent baseline. This would put me at ~83.0 kg, which is only ~3 kg increase but ~5 kg over dry weight. Since my blood pressure has been dropping precipitously near the end of each session this past week, the clinic have not been super aggressive with the ultrafiltration (UF) or fluid removal as they would like. They may even add another session for UF if I can’t lower my weight on my own.
All that is secondary. I’ve also noticed that my breathing has become more labored, especially if I lay down on my left side. That has always been marginally the case, but it feels a bit worse this week. I feel much better than a few months ago when I definitely had ~500 mL of fluid in my chest cavity, but maybe some has diffused back.
Recently, I’ve felt like the guy with an angel on one shoulder and the devil on the other, arguing about self-control. The right thing to do is to watch what I eat and drink more diligently since my weight is creeping up, and my phosphorus/potassium lab results are high. However, I’m getting more urges to forget all that, and eat/drink whatever I want. Maybe it’s spending nine months in semi-isolation that’s weakening my resolve? Or that I’m so close to the end of the tunnel for a kidney transplant but it on-hold indefinitely due to the recent COVID resurgence?
Ugh…
Life with chronic diseases 