Well, I didn’t get a call from UCLA today. It’s weird that they didn’t call me after dropping the bomb on me Monday afternoon. I did call my coordinator back but she didn’t answer her phone. Since her message did say that her assistant would call with the appointment time, I waited until today. At around noon, I called the assistant and had to leave a voicemail again. I don’t think anyone at the transplant center has answered my calls. It always goes to voicemail and then they call me back the next day. It’s about 12:10 am on Thursday and no one called me today either. A secure message through their portal was also not answered.
The planned surgery date is now <2 weeks away. I assume they want a more definite answer on the presence (or not) of Valley Fever since it could get a lot worse post surgery. I really doubt there is time for a proper diagnosis and treatment before the surgery date. That means moving it out into the future, with COVID-19 still a big unknown, and my sister needing more tests.
Life with chronic diseases 