Ugh, they tricked me again. I went to UCLA transplant center for what I thought was the final in-person appointment before sending me back to my own doctors in Orange County. In fact, the appointment last week was supposed to be the final appointment, but the doctor decided to cut my tacrolimus dosage so he wanted one more set of labs to check levels again. Since the “normal” range is not provided on the lab results, I do not know if my number is high/low/okay. All I know is they cut my dosage when the result was 11.7, and they also think today’s result of 7.1 is a bit low. In addition, my calcium levels are 0.1 mg/dL above the high range limit, so he wanted to see another test before I go back to my regular nephrologist. All the other numbers, including phosphorus and potassium, are all within normal range. Blood sugar is still high, but I think I can lower it a bit by reading food nutrition labels and information on added sugars more carefully.
Since I am out of free nights at Tiverton House, I scheduled the appointment as late as I could, which is 11:00 am. That means I need to have labs done by 9:00 am, so I need to leave the house at 7:00 am at the latest. 50 miles from my house to UCLA takes over 1.5 hours during morning commute/rush hour.
The appointment is in two weeks.
Life with chronic diseases 