Neuropathy Update – December 2021

I wrote several times in the past that I feel my peripheral neuropathy has gotten worse, but I was a bit uncertain each time. However, 11-months post-transplant, I know it is worse than a year ago. If I had to guess, I think it is due to having higher blood sugar from having a working kidney and some of the medications I am taking.

For example, right now I have three areas of pain in my feet. They are not as intense as a normal attack, but each is a low-level background pain. I have never had three areas of my feet hurting at once. The overall numbness has increased as well. I can barely move my toes on my right foot, and the tingling sensation is occasionally preventing me from sleeping. Finally, the frequency of intense pain attacks have decreased from about monthly to multiple times per week. Of course, this is still better than being on dialysis, but the numbness and pain is really stressing me out.

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