Fluid Restrictions

I asked the dialysis nutritionist how much fluids I can have each day and it sounded like 1.7 to 1.8 liters per day. However, she spoke with my parents on Thursday and now it sound like only 0.8 liters per day for all food and drinks. Arg! I checked with my nephrologist today and she said that figure sounds right since I have basically zero urine output. Whatever water I eat/drink will eventually need to be taken out by dialysis UF. For hemodialysis, there seems to be a limit of <10 mL/kg/hour to avoid cardiovascular complications. For 100 kg and 3.5 hours of dialysis, the max UF would be ~3.5 liters. Since there is three days between dialysis sessions over the weekend, about a liter a day seems to be my fluid restriction. I am already thirsty all the time. I carry around a tiny thermos bottle with ice so I can suck on ice to relieve thirst vs. drinking water all the time. I probably go through about two fills of ice, each one about 200 mL of water. That means about half of my daily water allowance goes to my ice habit. I’m also supposed to drink a Nepro protein shake daily which is another 237 mL of quota used up.

I’m trying to find out what it takes to clear my hold for a kidney transplant. Hopefully we’re talking about weeks to a few months instead of over a year. I think I will go crazy on dialysis for more than a few months.