It is getting worse. For about several months after the transplant, I was sleeping pretty well, especially compared to pre-transplant. However, I am having more and more difficulty falling asleep, and staying asleep. Right now it is 3:40 am, and I have not been able to sleep yet. It has been like this for three nights in a row. For nights that I have been able to fall asleep, I would get up around 2:00 am, then stay up the rest of the night. During weekdays, I end up taking several short naps in between work calls just to remain semi-functional.
I am hoping it is my body adjusting to medication, although that has not changed for almost two months. The only big change is the addition of Sensipar for calcium and PTH levels. I do not know if the insomnia is a side effect of that drug, or in combination with an existing medication.
I have not mentioned this for a long time, but the general numbness in my feet from peripheral neuropathy is definitely worse. It is sometimes difficult to notice changes over time, but I am 100% sure the buzzing is much more intense, and I can barely move my feet and toes below my ankles. Since the primary cause is diabetes, maybe the higher blood sugar post-transplant is aggravating the condition? It is still bearable but contributes to my insomnia as it is hard to ignore when trying to fall asleep.
Life with chronic diseases 