Life sucks. Sure, it sucks a lot less without dialysis, but there are still lots of health issues to deal with.
I was working on the computer at around 6:00 pm when I got a huge spike of pain on the inside of my left foot. Instead of going away and spiking periodically, the pain basically stayed for an hour. It was a bit less intense but still pretty painful nevertheless. Afterwards, the pain started shooting again for about three hours. I think it is mostly subsided now, but I was screaming into my pillow more than once.
It is super frustrating since I do not understand the pain mechanism or drivers. Why does it start up at random? And what exactly is causing the pain? What if I gave myself a lidocaine shot? It is combination of intense pain, and feeling helpless to do anything about it that really drains me in the moment.
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Speaking of medical issues, I had to get another blood test today for my endocrinologist. Her sent me documents via mail yesterday so I had to run down to the lab today. I waited about 20 minutes since I did not have an appointment, but everything was fine and they only drew two test tubes: one for a comprehensive metabolic panel, and the other for fructosamine. Not sure why the endocrinologist likes that test vs. an A1C now that I am no longer on dialysis. The results are out already and similar to UCLA’s results, several items are high. Glucose id definitely high at 150-something, but I know that going in. Potassium is at 5.5 so borderline high. Creatinine is 1.50, which is lower than the 1.58 a few weeks ago, but it is still on the high end. I have to doe the same test again for UCLA on Friday so hopefully it will continue to drop.
Life with chronic diseases 